Taking care of someone with COPD can be challenging at times. It can be hard being the one responsible for their care. That’s why it’s important to know help is available—and that you are NOT alone.

Staying on top of the details

Sharing information with the healthcare provider can play a big part in managing COPD—for you and the person you're caring for. Keeping track of questions, medications, insurance, and personal treatment details can be a challenge, so it helps to stay organized. Here are a few suggestions to get you started:

  • Set up a file to hold all appointment cards, prescription labels, printed pharmacy information, records of healthcare provider or dental visits, and test results;
  • List all medications and note any changes and dates;
  • Keep a list of specific questions to ask their healthcare provider at the next office visit;
  • Set up a calendar and record all visits and phone calls with healthcare providers and other caregivers;
  • Keep insurance information, numbers and forms together;
  • Keep a medical emergency list that includes these phone numbers:
    • Healthcare providers
    • Hospital and ambulance service
    • Job (if applicable)
    • Healthcare plan
    • Friends
    • Home healthcare workers

Click here for downloadable information and printable forms to help you set up your working COPD management file.

Taking care of the personal details

Proper medication, a close relationship with their healthcare provider, and good information are all important in coping with COPD. But sometimes the small details can have the biggest emotional impact on your loved one's treatment and quality of life.

  • With the help of their healthcare provider, set up a suitable exercise program.
  • Encourage outside activities and hobbies when possible.
  • Get other family members and friends involved.
  • Arrange for regular visits or phone calls from family and friends; this can provide a welcome break for your loved one—and you.
  • Help plan dental visits, eye exams, and haircuts.
  • Find a local COPD support group; if nothing is available locally, many exist online.

Help for COPD Caregivers

Remembering to take care of your own wellbeing is an important–and often overlooked–part of being a caregiver. If you're having problems–physical or emotional–caring for a family member with COPD, help is available for you, too. You just have to know who to ask: Click here to find out how to enlist family, friends, home healthcare providers, and outside organizations to help with physical care, as well as places to find emotional support from other COPD patients and caregivers around the country.

Lifestyle adjustments may well be necessary because of COPD, but the proper treatment, information, and support can help you get back to daily living.